March 9,2021 – Caregiving is hard enough, but add to it family dynamics which have enough baggage to fill an airport baggage claim area and now we have some real issues to struggle though. This is a real deep and open conversation about caregiving when tension and resentment are present, and how do we move through this with some kind of plan? In many cases it requires you to be the bigger person, put personalities asides and do what you need to do.
March 2, 2021 -Frontotemporal degeneration is one of the hardest types of dementia to live with, and that’s saying something! Lewy Body, Alzheimer’s, ALS and so forth are ridiculously difficult diseases, but FTD with judgment and reasoning not working and off the chart impulses that are out of control, it’s enough to make us lose our F*^#ing minds. It is so hard to explain to people how hard this journey is. In this podcast, I will attempt to help my #caregivernation keep your togetherness during this tumultuous times, and I will try to practice what I preach! We are in this together friends.
February 23, 2021 – I thought today would be a good day to explain the differences between Independent Living, Assisted Living and Memory Care. When people look to move someone who is often elderly and with memory problems, they sometimes think they can go to an assisted living to keep the cost down. Most of the time this will not work for very long, as the staff at the community see about 70 % of people in their home suffering with cognitive impairment and can spot memory loss from a thousand paces. Independent living means the person can get around on their own, go the the store, run errands, and live on their own terms without help. I will break all of this down for you. Understanding it from the start will save you money and heartache, as well as time moving your person from here to there.
February 16, 2021 – This is sort of an open letter type podcast to care partners and my #caregivernation talking about trusting yourself to learn as much as you can and being the best you can in difficult situations. We often question ourselves and don’t recognize that we have the intuition built in to show love and compassion to those we love. Many of us have the knack for knowing just the right thing to do and having the patience in reserve when we need to access it. Yes, we can make mistakes and that’s okay! Forgive yourself when you are short tempered or angry at the situation at hand, it happens. We can learn from our mistakes and always try to do better next time. You are enough my friends – stop second guessing yourselves!
February 9, 2021- A conversation with Dr. Christina Vaughan, about the ideals of palliative care, providing person centered care at its best for neurological patients and their families. This is an important and new way to focus on not only the diagnosis, but the spiritual, psychological and psychosocial aspects of the journey with diseases characterized by cognitive and memory loss. Spending more time with patients is a key and bringing in specialists like a chaplain, a social worker, and a person like me, as I help you in the home and with education. With this approach the doctors can explore who the person is, and not focus on the disease they have been diagnosed with. In my mind, this way of providing care is so refreshing and overdue! Dr. Vaughan and her team are utilizing this cutting edge approach and seeing remarkable results. I am so honored to work with the University of Colorado Hospital and collaborate on the care with the family.
Dr. Vaughan is a Neurologist at the University of Colorado Hospital Denver. She is an Associate Professor and the Director of the Division of Neuropalliative Care. It is a medical specialty that focuses on trying to relieve all sorts of suffering that people experience with chronic illness, trying to improve quality of life as a team.
Dr. Christina Vaughan
February 2nd, 2021 – Life as a care partner for a person with a dementia like Alzheimer’s, Lewy Body, or any other type of cognitive impairment and memory loss, is difficult to say the least. With or without support, you have to find a way to not only survive, but to thrive. This is why we must be resilient, meaning, we must find a way to overcome obstacles and adversity to find a positive outcome. In this podcast, I will take you down a pathway to help you find the resources you need and hopefully help you find some peace on the way.
Sarah Thompson is a board-certified music therapist who has worked with people with neurologic differences for over 17 years. She is a book contributor, speaker, and researcher who loves discussing how neuroscience-based music interventions can change people’s lives. Sarah is the CEO of Rehabilitative Rhythms, a Denver-based nonprofit organization.
For more information:
A Lifetime With Music: https://possiblewithmusic.org/a-lifetime-with-music/
Outline of Discussion:
Why is music so helpful for individuals with Alzheimer’s and dementia?
- How music is processed
- Considerations for hearing loss
How exactly can music help someone living with dementia?
How is music therapy different than simply listening to music on an iPod or on Alexa?
- Skilled intervention
- Parallel of going for a walk vs. physical therapy
What are some tips that you could share for caregivers to use right now?
January, 21,2021 – This podcast dives deep into the issues we have when we are low on money.
January 12, 2021 – Engagement and activities are designed to be fun, concentrating on participation, not perfection, when working with a person with memory loss. Make sure the time spent lessens stress and encourages positive enlightenment for everyone. Make communication and participation enjoyable and if it’s not, make the process more simple for all of you. I have 150 fun activities that I have documented which will help and will be happy to send to anyone who asks. Today I will go over a huge part of my list.