This show on October 15th, was all about the launch of my new Bundles. Written bits of information for families and professionals that is free of charge. 25 Bundles in all answering most if not all of your questions. I also talked about what I do with my company, classes, in-home assessments and so forth.
What are the Bundles? They are pages of information, written by the entities who provide the services which will help caregivers assisting those with memory loss or cognitive impairment. Examples:
- How do I bathe my loved one without a battle?
- How do we discuss the end of driving privileges when it’s no longer safe?
- How do I choose memory care?
- Averting scams – mail fraud, credit card theft, crimes against humanity, telephone scams
- Talking to a family member with dementia about helping with finances
- Wandering issues
- What is Medicare and what does it cover?
- How do I apply and qualify if I need Medicaid?
- A form to fill out that is up to date for the times – What you need to know about me!
- Working with law enforcement.
- Much More! Visit https://summitresiliencetraining.com/bundles/
From my heart to yours, trying to save time and brain energy with a one shop stop for answers to your burning questions about caring for the people you love.
This Week October 8th, My guest was Dr. Christina Vaughn from UC Denver Neurology and Movement Disorders Clinic. We had a light hearted discussion of what Hospice is and how it works! Hospice helps the entire family and the parameters around care seem to change every year. Learn the truth and see if it works for you when a loved one is very ill or chronically ill.
Dr. Timothy Boyd, PHD, who works at the Rocky Mountain Alzheimer’s Disease Center in Colorado, shared astonishing and hopeful findings of an exciting research trial, designed to end Alzheimer’s, this week on my show. Explaining their Leukine Trial, Boyd told my listeners that preliminary results on the first human trials of the drug “Leukine” as a treatment for Alzheimer’s have met with unexpected success.
Dr. Boyd, who works with the team headed by renowned researcher Dr. Huntington Potter, shared the news with a detailing of their initial results. Essentially, the first safety trials for Leukine involved 32 people with the disease. 13 were injected with the drug itself. 19 others received a placebo, or, just plain salt water. The results were surprisingly positive. Compared to their starting place, the people who received Leukine actually improved in their cognition, as measured by the MMSE, which is the Mini Mental State Exam. And the people who received the salt water placebo stayed the same. So that means that at the end of treatment there was a big difference between the people who received Leukine and the people who received placebo. Further, the patients who did improve did so quickly. They were showing results in just a matter of three weeks, after only some 15 injections.
“Alzheimer’s disease takes probably decades before it even starts to present the first signs of having any cognitive impairment,” said researcher Dr. Timothy Boyd. “So to improve cognition within only 15 days of an injection of a treatment–that is very astonishing.”
And even more remarkable is that within that same period of time, the Leukine patients actually began to show some improvement in day to day activity, able to once again do things that the disease had taken from them.
Listen to my interview to learn more!
My guest this week, Dr. Benzi Kluger MD is the Chief and founder of the Palliative Care Center and Associate Professor of Neurology at the University of Colorado Hospital. Dr. Kluger directs the University of Colorado’s Neurology Supportive and Palliative care clinics. These team-based clinics are open to any patient or family affected by a neurologic or neurosurgical condition. The goals of this clinic are to improve the quality of life and reduce suffering for patients and families by helping them with difficult medical symptoms (e.g. pain, fatigue), psychiatric symptoms (e.g. depression), psychological issues (e.g. guilt, grief), caregiver support, spiritual wellbeing and planning for the future. His specific clinical interests include movement disorders (e.g. Parkinson’s disease, tremor, dystonia, chorea) and disorders of thinking and memory. Regarding his care philosophy, Dr. Kluger says “I treat people not diseases.” He goes on to share that he believes everyone has unique perspectives, priorities, strengths and weaknesses that are important to understand in working towards their health goals. Good communication is critical to this relationship, especially his ability to really hear patients and to communicate his thoughts in a way that is understandable. He is open to admitting when he doesn’t have the answers and he enjoys working with a team of other clinicians.
The week of August 27th I hosted part two of my show with my sisters Sandy Born, Sue Fleming and Judy Fleming on my show as guests. We continued the discussion about what we experienced through the journey with our mom’s dementia. We were able to change state laws in Illinois based on the abuse our mom endured at the 1st nursing home we chose. We still feel angst and regret that we didn’t make a better choice. We also had a few laughs over the antics of the residents and mom at her second care community. This was a heavy, then light hearted and laughter, tear filled 1/2 hour.
My guests today are my sisters, Sandy Born, Sue Fleming and Judy Fleming. They came from Decatur, Illinois for the weekend, to attend an Alzheimer’s Research Fundraiser that my husband & I held for the Alzheimer’s Research Center and Memories Disorders Clinic at the University of Colorado Hospital at the Anschutz Campus. We have a very open and honest conversation about Mama and her behaviors, our victories and painful mistakes and we share with #caregivernation how our journey flowed. We also discuss the early years and stages, panic attacks, taking the driver’s license away, the 1st nursing home disaster, the subsequent issues with moving her, Judy getting into counseling for her own guilt and depression issues. Part two is next week!
On my show today I talked about how to get family members engaged in care of a person with dementia, when they generally refuse to help. This was in response to a blog I wrote earlier in the week (see Blog on different tab) where I called out family on behalf of lonely, tired caregivers everywhere. Today’s show was an effort to give them 50 easy ways to participate, even if they never physically visit. These ideas include using social media, and many terrific ideas that anyone can utilize.
September 2, 2018 I had Rebecca Engle and Kristen Beatty on my show to talk about the Denver Walk to End Alzheimer’s and others, and why it is so fun to attend one in your area. We walk to share our journey with those who understand, but also to raise awareness and money for services and resources which families and friends desperately need. The Walk to End Alzheimer’s can be an enjoyable and moving experience in every city where it is held. They provide kids play areas, music, resources from vendors who work with various dementias and more. It is a chance for families to speak one on one with these folks in safe and non intimidating surroundings. Find a Walk near you by signing up at https://www.alz.org/
In Denver, Jill Lorentz will be at the Walk with Cruisin EZ 1430 am van and her company Summit Resilience Training.com https://summitresiliencetraining.com/ Stop by and say hello and tell her your story of why you walk , and who you are walking in honor or memory of.
My guest this week was Death and Tax Attorney, Klaralee Charlton. We talked about some of the top Tax Considerations for Aging Parents. Topics include whether a parent needs to file a tax return, how children can communicate with the IRS on a parent’s behalf, tax deductions for aging taxpayers, and how to deal with a parent’s home. Klaralee Charlton is a Shareholder with Katz, Look & Onorato, P.C. As part of her practice, Klaralee guides clients through the process of administering a loved one’s estate with a focus on minimizing estate and income tax liability. She also works with clients to ensure ongoing tax compliance and prepares estate and trust income tax returns annually. firstname.lastname@example.org 303-832-1900
Bring your photos of your loved one to create a collage and conversation around their life before they had dementia. This will be a fun walk down memory lane! I had trouble remembering my Mama before she was diagnosed with Alzheimer’s disease. This realization made me think it would be interesting to review photos and memories pre-diagnosis for myself and others. If you want to join the workshop, you must RSVP to 303-690-0700 to reserve your spot!
Belleview Heights Alzheimer’s Special Care Center 14500 E. Belleview Ave. Aurora 80015 303-690-0700 or call Summit Resilience Training at 303-420-6988