2 Comments

1. 

   Carol hougnon on April 11, 2023 at 8:35 pm

   I would love to try your game out prototype.my husband who is 10 years into PCA which has become corticobasal syndrome. He also seems to fall into Progressive supernuclear palsy. FTD. As of today, he is blind,can not walk , extremely ridged, and unable to do anything. All he does is sit in the wheelchair. His head is at various postures, which he does not know, he holds his legs straight out for hours. Interesting enough, he can still carry on a conversation, even if it is a little delusional. No real memory loss. He enjoys a few hours of music but then enough. he no longer wants to listen to books.. we no longer can leave our home. Help! Thank you, you have given me so much guidance during our journey.

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     summitresilience on April 12, 2023 at 8:44 am

     HI Carol,

     When it is ready, I will add you to my focus group!!!Sorry to hear your husband is struggling!

     Jill

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